Vulvar Cancer Awareness Forum
Vulvar Cancer Awareness, Education, Patient Support and Patient Advocacy
Based in USA
Founder S. Yohanna Hoehler.
About
Vulvar Cancer Awareness Forum is a non-profit Organization. It is our mission to raise awareness for this little talked about cancer as well as educate on it.
We also actively advocate for change and advancements in Vulvar Cancer treatments, early detection, development of screenings, etc. Besides that, we advocate directly on behalf of patients who are having difficulties going through the diagnostic stages, and those who have already been diagnosed.
Knowing there is a lack of support for Vulvar Cancer Patients which often leads to feelings of isolation and loneliness, we offer two private support groups on Facebook, one for Vulvar Cancer and one for VIN (pre-cancer), where patients can become a part of supportive and understanding communities which have turned out to be a safe haven for many.
Currently, we are getting ready to launch our Vulvar Cancer Care Box program which will be the first of its kind. The care boxes, which will contain some needed items and some to lift ones spirits, will be available to those with active disease free of charge.
The Vulvar Cancer Community may be largely overlooked, but we are changing that one step and one person at the time.
Reason for joining The Vulva Directory
There is strength in numbers and when it comes to vulva or gynaecological health in general, there is still such a lack of awareness, support, etc. I want my organization to be part of the directory because together we can and will make a difference.
Find us
Website -www.vulvarcancerawarenessforum.com
Instagram - www.instagram.com/vulvarcancerawareness
Facebook -
www.facebook.com/vulvarcancerawarenessforum
VULVAR CANCER SUPPORT GROUP:
www.facebook.com/groups/vulvarcancerpatientsupport/
VIN SUPPORT GROUP:
www.facebook.com/groups/vinpatientsupport/
Twitter -
www.twitter.com/VulvarCancerUS
Email - vulvarcancerawareness@gmail.com